Yayasan MPS & Penyakit Langka

What is a rare disease?
Rare diseases are life threatening or chronically debilitating diseases with a low prevalence (less than 2000 people in a population) and a high level of complexity. Rare diseases are often seen as unimportant especially in developing countries due to small number of patients, but collectively these diseases are quite common.

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1st ASEAN Rare Disease Network Meeting
This meeting aims to connect leaders who work tirelessly for the Rare Disease community in their home country and Being a devoted and leading patient advocate in the region, This meeting allowing us to exchange and network, share experiences and coordinate views for the region.

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Grand Launching Indonesian Medical Education and Research Institute Fakultas Kedokteran Universitas Indonesia
Obtaining definitive diagnoses of rare diseases is still a constraint in Indonesia because of the limited experts who are interested in rare diseases as well as limited facilities. On Wednesday, the 12th of April 2017, Yayasan MPS dan Penyakit Langka Indonesia

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22 Nov 2017

What is Gaucher Disease?

Gaucher disease is an inborn error of metabolism caused deficiency of an enzyme called glucocerebrosidase

02 May 2019

Funwalk Indonesia Rare Disease Day 2019

Funwalk on Sunday, February 24th, 2019, at the Car Free Day Jl. Sudirman, Central Jakarta, was held as an opening of the series events to celebrate World Rare Disease Day 2019