Official Opening of Indonesia Center of Excellence for Rare Diseases

Rare diseases are often forgotten and considered less important because there are small numbers o

What are the problems faced by health workers and parents when managing patients with a rare disease?

Problems that occur when managing rare diseases are mainly due to limited number of cases (as already explained by the term

What is Tyrosinemia?

Tyrosinemia is a genetic disorder characterized by disruptions in the multistep process that breaks down the amino acid tyrosine, a building block of most proteins.

One of Fero's paintings, Morquio Syndrome patient