18 Aug 2017
What is Tyrosinemia?
Tyrosinemia is a genetic disorder characterized by disruptions in the multistep process that breaks down the amino acid tyrosine, a building block of most proteins.
21 Oct 2019
Yayasan MPS dan Penyakit Langka Indonesia Represented Indonesia in Asian Rare Disease Patient Forum
Our foundation, Yayasan MPS dan Penyakit Langka Indonesia (Indonesian MPS and Rare Diseases Foundation) had the opportunity to join the “Patient Advocacy Capability Training” Workshop held in Novotel Singapore on Stevens Hotel
14 May 2017
Indonesia Rare Disease Day 2016
Rare Disease Day was held on the 29th of February 2016. The theme of this event was “Voicing the Patient’s Rights in Obtaining Ease in Diagnosis and Disease Management”