Official Opening of Indonesia Center of Excellence for Rare Diseases

Rare diseases are often forgotten and considered less important because there are small numbers o

Jeune Syndrome: Is There Any Hope?

Jeune syndrome or asphyxiating thoracic dysplasia is a disease which affects the cartilage and bones.

What are the problems faced by health workers and parents when managing patients with a rare disease?

Problems that occur when managing rare diseases are mainly due to limited number of cases (as already explained by the term

One of Fero's paintings, Morquio Syndrome patient