• What is a rare disease?

    Rare diseases are life threatening or chronically debilitating diseases with a low prevalence (less than 2000 people in a population) and a high level of complexity. Rare diseases are often seen as unimportant especially in developing countries due to small number of patients, but collectively these diseases are quite common.

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  • 1st ASEAN Rare Disease Network Meeting

    This meeting aims to connect leaders who work tirelessly for the Rare Disease community in their home country and Being a devoted and leading patient advocate in the region, This meeting allowing us to exchange and network, share experiences and coordinate views for the region.

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  • Grand Launching Indonesian Medical Education and Research Institute Fakultas Kedokteran Universitas Indonesia

    Obtaining definitive diagnoses of rare diseases is still a constraint in Indonesia because of the limited experts who are interested in rare diseases as well as limited facilities. On Wednesday, the 12th of April 2017, Yayasan MPS dan Penyakit Langka Indonesia

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  • Virtual Festival Initiated by Medical Students from All Over Indonesia to Raise Rare Disease Awareness

    Recently, Yayasan MPS & Penyakit Langka Indonesia took a part in an event initiated by medical students from all over Indonesia under the Asian Medical Students’ Association (AMSA) Indonesia

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14 May 2017

How to diagnose rare diseases?

Parents of children with rare diseases frequently complain about these things. Diagnosing rare disease is still

01 Oct 2020

Rare Disease Day 2020: Fair for Rare

Rare Disease Day is celebrated every year on February 29 th , a special day to celebrate rareness

23 Nov 2017

What is Hunter syndrome?

Hunter syndrome or Type II Mucopolysaccharidosis is a lysosomal storage disease which is caused due to iduronate-2-sulfatase(I2S) enzyme deficiency

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