27 Nov 2017
Official Opening of Indonesia Center of Excellence for Rare Diseases
Rare diseases are often forgotten and considered less important because there are small numbers o
18 Sep 2019
Jeune Syndrome: Is There Any Hope?
Jeune syndrome or asphyxiating thoracic dysplasia is a disease which affects the cartilage and bones.
14 May 2017
What are the problems faced by health workers and parents when managing patients with a rare disease?
Problems that occur when managing rare diseases are mainly due to limited number of cases (as already explained by the term