Official Opening of Indonesia Center of Excellence for Rare Diseases

Rare diseases are often forgotten and considered less important because there are small numbers o

Yayasan MPS dan Penyakit Langka Indonesia Represented Indonesia in Asian Rare Disease Patient Forum

Our foundation, Yayasan MPS dan Penyakit Langka Indonesia (Indonesian MPS and Rare Diseases Foundation) had the opportunity to join the “Patient Advocacy Capability Training” Workshop held in Novotel Singapore on Stevens Hotel

What types of rare diseases that have been diagnosed and managed in Indonesia?

Type I, II, III, IVA,VI,VIII Mucopolysaccharidosis, Classic phenylketonuria, 6-Pyruvil Tetrahydropterinsynthase deficiency

One of Fero's paintings, Morquio Syndrome patient