Official Opening of Indonesia Center of Excellence for Rare Diseases

Rare diseases are often forgotten and considered less important because there are small numbers o

What are the problems faced by health workers and parents when managing patients with a rare disease?

Problems that occur when managing rare diseases are mainly due to limited number of cases (as already explained by the term

Awareness campaign for medical practitioner in Indonesian Pediatric Congress XVII Yogyakarta

The existence of rare disease is questioned by almost everyone, including medical practitioners. Some think that we will not be able to find such disease in Indonesia and even if there is a rare disease then it is not treatable.

One of Fero's paintings, Morquio Syndrome patient