Awareness campaign for medical practitioner in Indonesian Pediatric Congress XVII Yogyakarta

The existence of rare disease is questioned by almost everyone, including medical practitioners. Some think that we will not be able to find such disease in Indonesia and even if there is a rare disease then it is not treatable.

Yayasan MPS dan Penyakit Langka Indonesia participated in an awareness campaign to remind the medical practitioners of rare diseases and also to introduce our vision and mission to the paediatricians in the Indonesian Pediatric Congress (KONIKA) XVII in Alana Hotel, Yogyakarta during August 8th-11th, 2017. This congress is a tri-annual event held by the Indonesian Pediatric Society. This was a momentum to meet our new members in Yogyakarta and we also presented special formula as donation for a patient with Maple Syrup Urine Disease (MSUD) (artikel MSUD). This event was also witnessed and supported by Nutrition and Metabolic Disease Working Group Indonesian Pediatric Society, represented by dr. Titis Prawitasari, SpA(K). One paediatrician from Yogyakarta dealing with rare diseases patients, dr. Neti Nuraini, SpA(K), also shared her experiences.

At this event, we met some passionate doctors who were interested to know rare diseases better. Although some was still sceptical, others cannot believe that

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