Events

Awareness campaign for medical practitioner in Indonesian Pediatric Congress XVII Yogyakarta

The existence of rare disease is questioned by almost everyone, including medical practitioners. Some think that we will not be able to find such disease in Indonesia and even if there is a rare disease then it is not treatable.

23 Aug 2017
Peni Utami selaku Ketua Yayasan MPS dan Penyakit Langka Indonesia memberikan sambutan pada Peringatan Hari Penyakit Langka Indonesia 2017

Indonesia Rare Disease Day 2017

Yayasan MPS dan Penyakit Langka Indonesia and RSUPN Dr. Cipto Mangunkusumo (RSCM) collaborates for the second time to celebrate the second Indonesia Rare Disease Day 2017

17 May 2017
ALL PARTICIPANTS ASEAN+ NETWORKING MEETING

1st ASEAN+ RARE DISEASE NETWORK MEETING

This meeting aims to connect leaders who work tirelessly for the Rare Disease community in their home country and Being a devoted and leading patient advocate in the region

17 May 2017

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