Events

ALL PARTICIPANTS ASEAN+ NETWORKING MEETING

1st ASEAN+ RARE DISEASE NETWORK MEETING

This meeting aims to connect leaders who work tirelessly for the Rare Disease community in their home country and Being a devoted and leading patient advocate in the region

17 May 2017
Dr. Damayanti menjelaskan alur kerja dan pencapaian Human Genetic Research Cluster IMERI FKUI kepada Bapak Wakil Presiden, Jusuf Kalla, dan para tamu lainnya dalam peresmian Gedung IMERI FKUI

Grand Launching Indonesian Medical Education and Research Institute Fakultas Kedokteran Universitas Indonesia

Obtaining definitive diagnoses of rare diseases is still a constraint in Indonesia because of the limited experts who are interested in rare diseases as well as limited facilities.

17 May 2017

Second Rare Disease Asia Conference

Small important steps taken by Yayasan MPS dan Penyakit Langka Indonesia in helping rare disease patients brought us to the Second Rare Disease Asia Conference. This event was conducted at the Pullman Bangsar Hotel in Kuala Lumpur, Malaysia from the 17th-19th of November 2016.

14 May 2017

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