Events

Official Opening of Indonesia Center of Excellence for Rare Diseases

Rare diseases are often forgotten and considered less important because there are small numbers of patients and also these disease often need many resources to treat.

27 Nov 2017

Awareness campaign for medical practitioner in Indonesian Pediatric Congress XVII Yogyakarta

The existence of rare disease is questioned by almost everyone, including medical practitioners. Some think that we will not be able to find such disease in Indonesia and even if there is a rare disease then it is not treatable.

23 Aug 2017
Peni Utami selaku Ketua Yayasan MPS dan Penyakit Langka Indonesia memberikan sambutan pada Peringatan Hari Penyakit Langka Indonesia 2017

Indonesia Rare Disease Day 2017

Yayasan MPS dan Penyakit Langka Indonesia and RSUPN Dr. Cipto Mangunkusumo (RSCM) collaborates for the second time to celebrate the second Indonesia Rare Disease Day 2017

17 May 2017

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